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Patient Activation Network

Patient Activation Network

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Patient Activation Network
Patient Activation Network

Patient Activation Network

Patient Activation Network

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Real Patients Real Stories. Real Inspiration.

Latest Episodes

PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

Spinal Muscular Atrophy (SMA) is a rare disease that affects the motor nerve cells in the spinal cord. SMA may affect a person’s ability to eat, walk, or even, breathe. SMA is also the number one cause of death in infants. In this episode, Dr. Susan Begelman discusses what causes SMA, newborn screening and hope on the horizon. About Dr. Susan Begelman Dr. Susan Begelman is the Vice President of the Rare Disease and Neuroscience Medical Unit in US Medical Affairs at Genentech. In this role, Susan provides scientific leadership for a department responsible for generating and executing medical strategies across a broad portfolio of therapeutic areas. Susan is widely regarded as a respected leader with an unwavering commitment to patients and has over a decade of experience in the biopharmaceutical industry. Since joining Genentech in 2008, Susan has overseen product development activities and provided oversight of medical launch strategies and phase 3b/4 trials in multiple therapeutic areas that include cardiovascular disease, neuroscience, rare disease, and stroke. Prior to joining the biopharmaceutical industry, she was an academic vascular medicine physician in the Department of Cardiovascular Medicine and Medical Director of the Noninvasive Vascular Laboratory at the Cleveland Clinic for six years. Susan received a Bachelor of Arts in Biology from the University of Pennsylvania and her Medical Doctorate from Hahnemann University School of Medicine in Philadelphia. She completed her residency in internal medicine and fellowship in vascular medicine at the Cleveland Clinic. Susan is a fellow of the Society for Vascular Medicine for which she was a Committee Chair and held elected positions as a Board of Trustees Member, Secretary, and Treasurer. Susan is also a fellow of the American College of Cardiology. Episode Details * About Dr. Susan Begelman * What is Spinal Muscular Atrophy and how it is typically diagnosed * Newborn screenings how early diagnosis impacts overall prognosis * Parent expectations for having a child with SMA * Hope on the horizon for those with SMA Related Links Cure SMA (http://www.curesma.org/) SMA Foundation (http://www.smafoundation.org/) Muscular Dystrophy Association (https://www.mda.org/disease/spinal-muscular-atrophy) United Spinal Association (https://www.unitedspinal.org/) Click the podcast player above to listen, or you can find our podcast on your favorite channels:iTunes,Stitcher,TuneIn, and more. Thank you for listening and we look forward to bringi...

20 MINAUG 14
Comments
PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

On this episode of the Patient Activation Network Podcast, we talk to Phyllis S. Quinlan, author and nurse entrepreneur, about bullying in healthcare. Phyllis has practiced in a variety of emergency services, acute care, subacute care and long term care settings. She holds national certifications in Critical Care, Emergency Nursing and Nursing Professional Development; and has held senior leadership positions in administration and education. She is also a Legal Nurse Consultant. She is a regular on the online program, Nursing Success TV http://www.nursingsuccesstv.com in her Ask Dr. Phyllis coaching segment and she was a featured speaker in five of the Take Care of Your Nursing Career Webcast Series offered by the National Healthcare Career Network. On this podcast, Phyllis is also discusses her new book, Bringing Shadow Behavior into the Light of Day. This book provides healthcare leaders with a guideline for the assessment and management of the disruptive behaviors of bullying and...

18 MINAPR 7
Comments
PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

PAN55: Share the Care with Sheila Warnock

Sheila Warnock had several profound experiences change her life. First, she became sole caregiver of her ill mother and an emotional crutch for her best friend, Susan, who was diagnosed with cancer. By undertaking this dual role, Sheila truly experienced the tremendous burden caregivers have to endure. In 1988, she became part of a group of 12 women (mostly strangers to each other) who came together andstayed together for the next three and a half years to care for friend Susan. The contrast of caring for someonewithout support to the experience of sharing responsibilities with a group proved to Sheila that this newcollaborative approach to caregiving was something of immeasurable value and needed to be shared withcaregivers everywhere. As a result, she and her co-author, Cappy Capossela, documented the systems used by the group in their book,Share The Care, How To Organize A Group To Care For Someone Who Is Seriously Ill,Simon & Schuster, 1995. This system guides friends, neighbors...

18 MINMAR 6
Comments
PAN55: Share the Care with Sheila Warnock

PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

“This program helps military vets get the credits they deserve,” said Mary Beth Prendergast about the Vets to Bachelor of Science in Nursing (BSN) program at National University in San Diego. During this episode, Mary Beth discusses this program and how the flexibility of the program allowed a student to spend time with his mom in her final days. About Mary Beth Prendergast Ms.Mary Beth Prendergastis a Nursing faculty member atNational Universityand has earned a M.S. Nursing from San Diego State University. About National University National University is San Diego’s largest private nonprofit university, founded in 1971 by retired U.S. Navy Lt. Cmdr. David Chigos. National University’s mission is to provide accessible, achievable higher education to adult learners. Today, National University educate students from across the U.S. and around the globe, with over 150,000 alumni worldwide. Episode Details * About Mary Beth Prendergast* Vets to BSN Program at National University* How...

19 MINFEB 12
Comments
PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

“As I got on the elevator that final time, I realized that this was the end of my clinical career.” Karen Daley, RN reflected on what it felt to walk out of the Emergency Room for the last time after an accidental needle stick led to a diagnosis of HIV and Hep C. “I just never thought it would end this way.” On this episode of the Patient Activation, Karen Daley shares her emotional journey and the work she is doing to help raise awareness for needle stick safety. About Karen Daley, PHD, MPH, RN, FAAN Karen Daleyis an American nurse, past president of theAmerican Nurses Association, former director of theAmerican Nurses Credentialing Centerand an advocate for the prevention ofneedlestick injuryin healthcare. Karen worked as an emergency room nurse for many years until sustaining a needlestick injury on the job in 1998. After drawing blood from a patient, she was stuck by another needle that was wedged in the container as she was trying to dispose of the needle. A few months late...

16 MINFEB 4
Comments
PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

PAN52: Pushing the Limits with Dr. Shawna Pandya

Dr. Shawna Pandya dreamed of being a super hero as a little girl. As she grew, her dreams shifted to becoming an astronaut and medical doctor. While she may not done a cape to work, she is an every day hero who helps patients everyday and helps further our mission to explore this galaxy and beyond. On this episode of the Patient Activation Network podcast, we discuss Dr. Pandya’s fascinating career journey along with physician communication, soft skills, patient experience and what doctors can learn from pilots. About Dr. Shawna Pandya Dr. Shawna Pandya is a physician, speaker, martial artist, citizen-scientist astronaut candidate with ProjectsPoSSUM&PHEnOM, and prime crew aquanaut withProject Poseidon. Through her involvement with Project PoSSUM, Dr. Pandya was part of the first crew to test a commercial spacesuit in micro-gravity.Dr. Pandya holds degrees in Honors Neuroscience (BSc. Hons,University of Alberta), Space Studies (MSc.,International Space University) and medicine (MD,...

11 MINJAN 22
Comments
PAN52: Pushing the Limits with Dr. Shawna Pandya

PAN51: Erin Andrews and Dr. Jessica Shepherd on Cervical Cancer Awareness Month

Did you know thatJanuary is Cervical Health Awareness Month? Sports reporter and television host, Erin Andrews, was diagnosed with cervical cancer in 2016. Today, Erin is cancer-free and urging all women to see their doctors and get regular testing for this preventable and treatable disease. On this episode of the Patient Activation Network Podcast,Erin will share her personal journey with cervical cancer and tips to mobilize women to take charge of their health and get tested. Erin will be joined by OB-GYN and women’s health expert, Dr. Jessica Shepherd, who will discuss the best way for women to protect themselves against cervical cancer and advice for preparing for their annual exam. Dr. Shepherd is an OB/GYN and women’s health expert and also the founder of Her Viewpoint, an onlinewomen’s health forum that focuses on addressing taboo topics in acomfortable setting. Asan OB/GYN, she practices at theUniversity of Illinois at Chicago and also serves as theDirector of Minimally I...

13 MINJAN 15
Comments
PAN51: Erin Andrews and Dr. Jessica Shepherd on Cervical Cancer Awareness Month

PAN50: Jack Osbourne’s MS Detour

Jack Osbourne grew up in the public eye. In 2012, a problem with Jack Osbourne’s eye went public. After The Osbournes ended, Jack went on to star in a number of television shows. The first was Jack Osbourne:Adrenaline Junkie, a reality TV show that followed Jack’sjourney to get into peak mental and physical shape in order to conquer the challenge of climbing the 3000 foot rock face of El Capitan in Yosemite National Park. Next, Jack went on to star in Haunted Highway. It was during filming this show that his life would be forever changed. “This little black dot appeared in the center of my vision”, reflects Jack on the start on what would become his MS detour. He was filming Haunted Highway in Utah when the problem with his vision began. “By the time I got home 48 hours later, I lost 90 percent of the vision in my right eye.” Upon returning home, his eye doctor sent him for an MRI. “About two days later, they were like, ‘This is looking like MS’.” Jack has not let his diag...

18 MIN2018 NOV 26
Comments
PAN50: Jack Osbourne’s MS Detour

PAN49: Vincible with Kayla Redig

“It felt really odd to me to walk into the transfusion center for chemo and see a room full of men my grandfather’s age and then go to a doctor’s appointment in a different room covered in balloon stickers and children’s handprints on the walls. Even finding other patients with a similar age and diagnosis across the country was a struggle. Where did I fit in? I often felt very alone but I knew there had to be other young adult patients out there that felt the same. I knew this wasn’t the way the cancer experience had to be for us.” – Kayla Redig About Kayla Redig Kayla Redig was a competitive athlete and elementary school teacher before she was diagnosed with breast cancer at 24 years-old. After experiencing the isolation and uniqueness of being a young adult cancer patient, she grew determined to change the experience for fellow patients and survivors. About Vincible VINCIBLE is a documentary that follows 27-year-old cancer survivor, KaylaRedig, as she creates a voice for th...

17 MIN2018 OCT 29
Comments
PAN49: Vincible with Kayla Redig

PAN48: Cancer Survivor Seeking School Board Nomination

When we last spoke to Laura Blackwell,she shared her journey of being a young mom diagnosed with breast cancer. She is now a 10year survivor of stage 1 Triple Negative Breast Cancer. You can hear her inspirational cancer journey here or by clicking the link below. Today, she is taking on a new kind of challenge. Laura Blackwell is running forCabarrus County School Board.In this podcast, Laura discusses her cancer journey, as well as, why she believes she is the best candidate for the school board. Related Links * https://www.blackwell4schoolboard.com/ * Facebook * Twitter * Instagram * PAN21: From Patient to Patient Advocate with Laura Blackwell

16 MIN2018 OCT 16
Comments
PAN48: Cancer Survivor Seeking School Board Nomination
the END

Latest Episodes

PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

Spinal Muscular Atrophy (SMA) is a rare disease that affects the motor nerve cells in the spinal cord. SMA may affect a person’s ability to eat, walk, or even, breathe. SMA is also the number one cause of death in infants. In this episode, Dr. Susan Begelman discusses what causes SMA, newborn screening and hope on the horizon. About Dr. Susan Begelman Dr. Susan Begelman is the Vice President of the Rare Disease and Neuroscience Medical Unit in US Medical Affairs at Genentech. In this role, Susan provides scientific leadership for a department responsible for generating and executing medical strategies across a broad portfolio of therapeutic areas. Susan is widely regarded as a respected leader with an unwavering commitment to patients and has over a decade of experience in the biopharmaceutical industry. Since joining Genentech in 2008, Susan has overseen product development activities and provided oversight of medical launch strategies and phase 3b/4 trials in multiple therapeutic areas that include cardiovascular disease, neuroscience, rare disease, and stroke. Prior to joining the biopharmaceutical industry, she was an academic vascular medicine physician in the Department of Cardiovascular Medicine and Medical Director of the Noninvasive Vascular Laboratory at the Cleveland Clinic for six years. Susan received a Bachelor of Arts in Biology from the University of Pennsylvania and her Medical Doctorate from Hahnemann University School of Medicine in Philadelphia. She completed her residency in internal medicine and fellowship in vascular medicine at the Cleveland Clinic. Susan is a fellow of the Society for Vascular Medicine for which she was a Committee Chair and held elected positions as a Board of Trustees Member, Secretary, and Treasurer. Susan is also a fellow of the American College of Cardiology. Episode Details * About Dr. Susan Begelman * What is Spinal Muscular Atrophy and how it is typically diagnosed * Newborn screenings how early diagnosis impacts overall prognosis * Parent expectations for having a child with SMA * Hope on the horizon for those with SMA Related Links Cure SMA (http://www.curesma.org/) SMA Foundation (http://www.smafoundation.org/) Muscular Dystrophy Association (https://www.mda.org/disease/spinal-muscular-atrophy) United Spinal Association (https://www.unitedspinal.org/) Click the podcast player above to listen, or you can find our podcast on your favorite channels:iTunes,Stitcher,TuneIn, and more. Thank you for listening and we look forward to bringi...

20 MINAUG 14
Comments
PAN57: Spinal Muscular Atrophy with Dr. Susan Begelman

PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

On this episode of the Patient Activation Network Podcast, we talk to Phyllis S. Quinlan, author and nurse entrepreneur, about bullying in healthcare. Phyllis has practiced in a variety of emergency services, acute care, subacute care and long term care settings. She holds national certifications in Critical Care, Emergency Nursing and Nursing Professional Development; and has held senior leadership positions in administration and education. She is also a Legal Nurse Consultant. She is a regular on the online program, Nursing Success TV http://www.nursingsuccesstv.com in her Ask Dr. Phyllis coaching segment and she was a featured speaker in five of the Take Care of Your Nursing Career Webcast Series offered by the National Healthcare Career Network. On this podcast, Phyllis is also discusses her new book, Bringing Shadow Behavior into the Light of Day. This book provides healthcare leaders with a guideline for the assessment and management of the disruptive behaviors of bullying and...

18 MINAPR 7
Comments
PAN56: Bullying in Healthcare with Phyllis S. Quinlan, PhD, RN-BC

PAN55: Share the Care with Sheila Warnock

Sheila Warnock had several profound experiences change her life. First, she became sole caregiver of her ill mother and an emotional crutch for her best friend, Susan, who was diagnosed with cancer. By undertaking this dual role, Sheila truly experienced the tremendous burden caregivers have to endure. In 1988, she became part of a group of 12 women (mostly strangers to each other) who came together andstayed together for the next three and a half years to care for friend Susan. The contrast of caring for someonewithout support to the experience of sharing responsibilities with a group proved to Sheila that this newcollaborative approach to caregiving was something of immeasurable value and needed to be shared withcaregivers everywhere. As a result, she and her co-author, Cappy Capossela, documented the systems used by the group in their book,Share The Care, How To Organize A Group To Care For Someone Who Is Seriously Ill,Simon & Schuster, 1995. This system guides friends, neighbors...

18 MINMAR 6
Comments
PAN55: Share the Care with Sheila Warnock

PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

“This program helps military vets get the credits they deserve,” said Mary Beth Prendergast about the Vets to Bachelor of Science in Nursing (BSN) program at National University in San Diego. During this episode, Mary Beth discusses this program and how the flexibility of the program allowed a student to spend time with his mom in her final days. About Mary Beth Prendergast Ms.Mary Beth Prendergastis a Nursing faculty member atNational Universityand has earned a M.S. Nursing from San Diego State University. About National University National University is San Diego’s largest private nonprofit university, founded in 1971 by retired U.S. Navy Lt. Cmdr. David Chigos. National University’s mission is to provide accessible, achievable higher education to adult learners. Today, National University educate students from across the U.S. and around the globe, with over 150,000 alumni worldwide. Episode Details * About Mary Beth Prendergast* Vets to BSN Program at National University* How...

19 MINFEB 12
Comments
PAN54: Vets to BSN Program at National University with Mary Beth Prendergast

PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

“As I got on the elevator that final time, I realized that this was the end of my clinical career.” Karen Daley, RN reflected on what it felt to walk out of the Emergency Room for the last time after an accidental needle stick led to a diagnosis of HIV and Hep C. “I just never thought it would end this way.” On this episode of the Patient Activation, Karen Daley shares her emotional journey and the work she is doing to help raise awareness for needle stick safety. About Karen Daley, PHD, MPH, RN, FAAN Karen Daleyis an American nurse, past president of theAmerican Nurses Association, former director of theAmerican Nurses Credentialing Centerand an advocate for the prevention ofneedlestick injuryin healthcare. Karen worked as an emergency room nurse for many years until sustaining a needlestick injury on the job in 1998. After drawing blood from a patient, she was stuck by another needle that was wedged in the container as she was trying to dispose of the needle. A few months late...

16 MINFEB 4
Comments
PAN53: HIV, Needlesticks and the story of Karen Daley, PHD, MPH, RN, FAAN

PAN52: Pushing the Limits with Dr. Shawna Pandya

Dr. Shawna Pandya dreamed of being a super hero as a little girl. As she grew, her dreams shifted to becoming an astronaut and medical doctor. While she may not done a cape to work, she is an every day hero who helps patients everyday and helps further our mission to explore this galaxy and beyond. On this episode of the Patient Activation Network podcast, we discuss Dr. Pandya’s fascinating career journey along with physician communication, soft skills, patient experience and what doctors can learn from pilots. About Dr. Shawna Pandya Dr. Shawna Pandya is a physician, speaker, martial artist, citizen-scientist astronaut candidate with ProjectsPoSSUM&PHEnOM, and prime crew aquanaut withProject Poseidon. Through her involvement with Project PoSSUM, Dr. Pandya was part of the first crew to test a commercial spacesuit in micro-gravity.Dr. Pandya holds degrees in Honors Neuroscience (BSc. Hons,University of Alberta), Space Studies (MSc.,International Space University) and medicine (MD,...

11 MINJAN 22
Comments
PAN52: Pushing the Limits with Dr. Shawna Pandya

PAN51: Erin Andrews and Dr. Jessica Shepherd on Cervical Cancer Awareness Month

Did you know thatJanuary is Cervical Health Awareness Month? Sports reporter and television host, Erin Andrews, was diagnosed with cervical cancer in 2016. Today, Erin is cancer-free and urging all women to see their doctors and get regular testing for this preventable and treatable disease. On this episode of the Patient Activation Network Podcast,Erin will share her personal journey with cervical cancer and tips to mobilize women to take charge of their health and get tested. Erin will be joined by OB-GYN and women’s health expert, Dr. Jessica Shepherd, who will discuss the best way for women to protect themselves against cervical cancer and advice for preparing for their annual exam. Dr. Shepherd is an OB/GYN and women’s health expert and also the founder of Her Viewpoint, an onlinewomen’s health forum that focuses on addressing taboo topics in acomfortable setting. Asan OB/GYN, she practices at theUniversity of Illinois at Chicago and also serves as theDirector of Minimally I...

13 MINJAN 15
Comments
PAN51: Erin Andrews and Dr. Jessica Shepherd on Cervical Cancer Awareness Month

PAN50: Jack Osbourne’s MS Detour

Jack Osbourne grew up in the public eye. In 2012, a problem with Jack Osbourne’s eye went public. After The Osbournes ended, Jack went on to star in a number of television shows. The first was Jack Osbourne:Adrenaline Junkie, a reality TV show that followed Jack’sjourney to get into peak mental and physical shape in order to conquer the challenge of climbing the 3000 foot rock face of El Capitan in Yosemite National Park. Next, Jack went on to star in Haunted Highway. It was during filming this show that his life would be forever changed. “This little black dot appeared in the center of my vision”, reflects Jack on the start on what would become his MS detour. He was filming Haunted Highway in Utah when the problem with his vision began. “By the time I got home 48 hours later, I lost 90 percent of the vision in my right eye.” Upon returning home, his eye doctor sent him for an MRI. “About two days later, they were like, ‘This is looking like MS’.” Jack has not let his diag...

18 MIN2018 NOV 26
Comments
PAN50: Jack Osbourne’s MS Detour

PAN49: Vincible with Kayla Redig

“It felt really odd to me to walk into the transfusion center for chemo and see a room full of men my grandfather’s age and then go to a doctor’s appointment in a different room covered in balloon stickers and children’s handprints on the walls. Even finding other patients with a similar age and diagnosis across the country was a struggle. Where did I fit in? I often felt very alone but I knew there had to be other young adult patients out there that felt the same. I knew this wasn’t the way the cancer experience had to be for us.” – Kayla Redig About Kayla Redig Kayla Redig was a competitive athlete and elementary school teacher before she was diagnosed with breast cancer at 24 years-old. After experiencing the isolation and uniqueness of being a young adult cancer patient, she grew determined to change the experience for fellow patients and survivors. About Vincible VINCIBLE is a documentary that follows 27-year-old cancer survivor, KaylaRedig, as she creates a voice for th...

17 MIN2018 OCT 29
Comments
PAN49: Vincible with Kayla Redig

PAN48: Cancer Survivor Seeking School Board Nomination

When we last spoke to Laura Blackwell,she shared her journey of being a young mom diagnosed with breast cancer. She is now a 10year survivor of stage 1 Triple Negative Breast Cancer. You can hear her inspirational cancer journey here or by clicking the link below. Today, she is taking on a new kind of challenge. Laura Blackwell is running forCabarrus County School Board.In this podcast, Laura discusses her cancer journey, as well as, why she believes she is the best candidate for the school board. Related Links * https://www.blackwell4schoolboard.com/ * Facebook * Twitter * Instagram * PAN21: From Patient to Patient Advocate with Laura Blackwell

16 MIN2018 OCT 16
Comments
PAN48: Cancer Survivor Seeking School Board Nomination
the END