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Who Lives Like This?!

Elizabeth Aquino and Jason Lehmbeck

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Who Lives Like This?!
Who Lives Like This?!

Who Lives Like This?!

Elizabeth Aquino and Jason Lehmbeck

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About Us

Join us on our podcast journey to learn from conversations with OUR kinds of celebrities - caregivers living this life honestly and making an impact for our children and others. We’ll also be talking to the other experts, those who help us and fight for us in education and the medical field, for disability rights and so on.

Latest Episodes

Tiger Moms Have Nothing On Lemur Moms: Megan Dolan

This week, we’re excited to release our newest podcast with guest Megan Dolan. Megan is an actor and writer who self-identifies as a “lemur mom” -- because, in her words, “we can’t all be tiger moms.” We had a great conversation about what it means to be a lemur mom, how Megan has worked through her own diagnosis along this journey, and balancing home life with her wonderful creative work. Click the link in our bio for the full episode!

50 MIN1 w ago
Comments
Tiger Moms Have Nothing On Lemur Moms: Megan Dolan

Transforming Lives with Erin Starks

Strap on your seatbelts! You're in for a real ride with today's guest, Erin Starks.Her bio alone will leave you shaking your head in wonder, so wait until you hear all that she shares with us! As an educator, health advocate and mother of six children, Erin has spent more than a decade advocating for the rights of children and young adultswith disabilities and their families. She has worked with fellow educators, families and students in underserved communities throughout Atlanta and South Los Angeles. Her work is anchored in the belief that all children deserve the right to access valuable resources that enhance their learning in inclusive, diverse learning communities. She's leveraged her experience as the mother of a sixteen year old daughter, Kamiyah, who was born with a rare form of dwarfism, to continue her advocacy work for special education students through elementary school and beyond. In addition to her work in the classroom, Erin is the Founder and Director of OHMGirls Yo...

54 MINSEP 9
Comments
Transforming Lives with Erin Starks

Letting It Out With Christy Shake

Jason and I have had a brief hiatus and are back this week with Christy Shake, a writer, blogger, epilepsy advocate and champion of medical marijuana. Originally from the Seattle area, Christy came to Maine with her partner, professor and photographer Michael Kolster, by way of San Francisco where she had begun a successful career as an apparel designer. The birth of their son Calvin, now fifteen, required Christy to surrender her profession in order to care for him. Within weeks of Calvin’s complicated and fraught birth, she began writing about the experience. In 2010 she launched her blog, Calvin’s Story, in which she explores, among other things, motherhood, disability, epilepsy, medical cannabis, loss, grief, bigotry and injustice. She, Michael and Calvin livein Brunswick, Maine with their wackadoodle, Smellie. In today's podcast Christy speaks as honestly about the grit of parenting a child with significant disabilities as she sheds light on the grace of it all.

40 MINAUG 27
Comments
Letting It Out With Christy Shake

The Grace of the Sibling with Clio Chazan-Gabbard

It's been a few weeks since we recorded a conversation with seventeen-year-old Clio Chazan-Gabbard, the daughter of our recent guest Chris Gabbard. During those weeks, we have touched on just how moved and almost overwhelmed we were by this beautiful human being. We are so honored as parents of children with disabilities that Clio shared her life and experience with us. We know that you will feel the same and hope that you will share theconversation with your own children.

34 MINAUG 7
Comments
The Grace of the Sibling with Clio Chazan-Gabbard

The Comprehensive Caregiving of Dr. Audrey Griesbach

Regular listeners know that we usually talk with caregivers and siblings of children and young adults with disabilities, but every now and then we also like to pick the brains of or highlight those people who support us in the care of our children.Dr. Audrey Griesbachis a developmental pediatrician in the Los Angeles area whose practice is devoted entirely to the comprehensive evaluation and treatment of children with a wide variety of neuro-developmental disorders, including autism, cerebral palsy, genetic disorders, developmental and cognitive delays, learning disabilities, and ADHD and other behavioral disorders.

54 MINJUL 22
Comments
The Comprehensive Caregiving of Dr. Audrey Griesbach

Chris Gabbard: "A Life Beyond Reason"

This week, we had the pleasure of speaking with guest Chris Gabbard, author of “A Life Beyond Reason: A Father’s Memoir.” Chris is an associate professor at the University of Northern Florida. He published “A Life Beyond Reason” after his son August, who was born with significant disabilities, passed away in 2013. This week’s podcast delves into the beautiful life story of August and the real world consequences of a broken safety net.

49 MINJUL 9
Comments
Chris Gabbard: "A Life Beyond Reason"

Miggy's Guide to Navigating The Disability World

Awriter and artist, Amy Webb (aka Miggy) is a passionate advocate for disability rights and writes about the issues her family frequently faces. She interviewsother special needs' families and individuals with the hope of changing the perception of disability one story at a time. In today's podcast, we delved into Amy's journey and learned that Amy's life as an artist is what sustains her, what gets her out of bed in the morning and persists despite the challenges and joys of parenting in general. Amy shared the genesis of her children's book When Charley Met Emma, a creation that grew out of a blog post that she's written for years called Miggy's Guide to Navigating a Special Needs Encounter. When Charley Met Emma, illustrated by Merrilee Liddiard, is a children's book about a boy named Charlie who goes to a playground with his mother and has an encounter with a girl in a wheelchair -- a girl named Emma with limb differences. We hope you enjoy the show and we highly recommend you check out the book. Please subscribe to the show and give us a review on your favorite podcast provider: Apple Podcasts: bit.ly/ApplePodcastReview Google Play: bit.ly/GooglePodcastReview Spotify: bit.ly/SpotifyPodcastReview

47 MINJUN 25
Comments
Miggy's Guide to Navigating The Disability World

Welcome to Alaska - Elizabeth and Jason catch-up

We have been on a brief hiatus due to a couple of chaotic weeks for your favorite podcast hosts. In this episode Elizabeth and Jason check-in on each other, talk about an Alaskan adventure, children leaving the nest and much more. We also highlight our favorite episodes and insights from the last few months of shows. We hope you enjoy it! If you have a minute, please subscribe to the show and give us a review on your favorite podcast provider: Apple Podcasts: http://bit.ly/ApplePodcastReview Google Play: http://bit.ly/GooglePodcastReview Spotify: http://bit.ly/SpotifyPodcastReview

25 MINJUN 5
Comments
Welcome to Alaska - Elizabeth and Jason catch-up

"My Heart Can't Even Believe It" - Amy Silverman

Elizabeth met Amy Silverman in real life when she was asked to "engage in conversation" with her at my local independent bookstore. She knew of Amy at the time as a journalist who had recently published a memoir called My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome. We parents of children with disabilities and special needs know one another because of the communities we have created, and Elizabeth had seen Amy's work online, had friends who knew her and was otherwise familiar with her, but it was such a joy and honor to finally meet and then talk writing, books and -- well -- parenting a kid with special needs. In today's podcast, we got to pick Amy's brain on her new projects andwhat's been happening with her and her family since the book was published. Amy is funny -- so funny, in fact, that we laughed throughout the whole episode, and I think you'll very much enjoy joining us! Amyis a freelance writer/editor/teacher in her hometown of Phoenix, Arizona, a place she's still learning to love. She's married to Ray Stern, an editor at Phoenix New Times, the alternative newsweekly. They have two children, Annabelle and Sophie. When Sophie was born, the couple were surprised to learn that she had Down Syndrome. As Amy said, "Wait a second, I have never written about Down syndrome. I have never met a person with Down syndrome. I don't know anything about people with intellectual disabilities. [I] had to have a real come-to-Jesus with myself, which is not easy for a Jewish girl, and realize that I was the one who avoided people with Down syndrome in the checkout line at Safeway." In today's conversation, we spoke about the transitions our children face when their older siblings leave home for college, and that led to Amy telling us about her daughter Sophie's persistent questioning of her own place in the world.

52 MINMAY 14
Comments
"My Heart Can't Even Believe It" - Amy Silverman

Heather Barnes Jackson: "The Expression of Grief Being Praise"

In today's podcast, we had the great pleasure of talking with Heather Barnes Jackson, the co-founder and CEO of the Realm of Caring Foundation (RoC), an internationally acclaimed non-profit primarily serving families who are dealing with life-limiting and chronic health conditions and are using cannabinoid therapy.The foundationserves over 55,000 families and 1500 Health Care Professionals from all over the world through their care center that speaks 5 languages and fields over 7000 inquiries monthly. They reach over 1 million people a month through their efforts and awareness. RoC is doing innovative and first of its kind research with Johns Hopkins University, collaborating on the largest registry in the US. They use this research to deliver revolutionary education to the community. RoC has distributed over $350,000 in grants to families in need. They also have aided in over twenty states adding cannabis legislation since 2014. Heather talked a bit about how she started Realm of Caring and how it grew over 10,000% since 2013. She's also a published researcher, an author and a speaker who has presented in 7 countries. Today she shared with us her passion for community, social entrepreneurship and "disrupting the status quo." We got tips on how to turn off social media and take care of yourself, and she wowed us with an intense discussion of her most recent obsession -- suffering and grief and praise.

40 MINAPR 30
Comments
Heather Barnes Jackson: "The Expression of Grief Being Praise"

Latest Episodes

Tiger Moms Have Nothing On Lemur Moms: Megan Dolan

This week, we’re excited to release our newest podcast with guest Megan Dolan. Megan is an actor and writer who self-identifies as a “lemur mom” -- because, in her words, “we can’t all be tiger moms.” We had a great conversation about what it means to be a lemur mom, how Megan has worked through her own diagnosis along this journey, and balancing home life with her wonderful creative work. Click the link in our bio for the full episode!

50 MIN1 w ago
Comments
Tiger Moms Have Nothing On Lemur Moms: Megan Dolan

Transforming Lives with Erin Starks

Strap on your seatbelts! You're in for a real ride with today's guest, Erin Starks.Her bio alone will leave you shaking your head in wonder, so wait until you hear all that she shares with us! As an educator, health advocate and mother of six children, Erin has spent more than a decade advocating for the rights of children and young adultswith disabilities and their families. She has worked with fellow educators, families and students in underserved communities throughout Atlanta and South Los Angeles. Her work is anchored in the belief that all children deserve the right to access valuable resources that enhance their learning in inclusive, diverse learning communities. She's leveraged her experience as the mother of a sixteen year old daughter, Kamiyah, who was born with a rare form of dwarfism, to continue her advocacy work for special education students through elementary school and beyond. In addition to her work in the classroom, Erin is the Founder and Director of OHMGirls Yo...

54 MINSEP 9
Comments
Transforming Lives with Erin Starks

Letting It Out With Christy Shake

Jason and I have had a brief hiatus and are back this week with Christy Shake, a writer, blogger, epilepsy advocate and champion of medical marijuana. Originally from the Seattle area, Christy came to Maine with her partner, professor and photographer Michael Kolster, by way of San Francisco where she had begun a successful career as an apparel designer. The birth of their son Calvin, now fifteen, required Christy to surrender her profession in order to care for him. Within weeks of Calvin’s complicated and fraught birth, she began writing about the experience. In 2010 she launched her blog, Calvin’s Story, in which she explores, among other things, motherhood, disability, epilepsy, medical cannabis, loss, grief, bigotry and injustice. She, Michael and Calvin livein Brunswick, Maine with their wackadoodle, Smellie. In today's podcast Christy speaks as honestly about the grit of parenting a child with significant disabilities as she sheds light on the grace of it all.

40 MINAUG 27
Comments
Letting It Out With Christy Shake

The Grace of the Sibling with Clio Chazan-Gabbard

It's been a few weeks since we recorded a conversation with seventeen-year-old Clio Chazan-Gabbard, the daughter of our recent guest Chris Gabbard. During those weeks, we have touched on just how moved and almost overwhelmed we were by this beautiful human being. We are so honored as parents of children with disabilities that Clio shared her life and experience with us. We know that you will feel the same and hope that you will share theconversation with your own children.

34 MINAUG 7
Comments
The Grace of the Sibling with Clio Chazan-Gabbard

The Comprehensive Caregiving of Dr. Audrey Griesbach

Regular listeners know that we usually talk with caregivers and siblings of children and young adults with disabilities, but every now and then we also like to pick the brains of or highlight those people who support us in the care of our children.Dr. Audrey Griesbachis a developmental pediatrician in the Los Angeles area whose practice is devoted entirely to the comprehensive evaluation and treatment of children with a wide variety of neuro-developmental disorders, including autism, cerebral palsy, genetic disorders, developmental and cognitive delays, learning disabilities, and ADHD and other behavioral disorders.

54 MINJUL 22
Comments
The Comprehensive Caregiving of Dr. Audrey Griesbach

Chris Gabbard: "A Life Beyond Reason"

This week, we had the pleasure of speaking with guest Chris Gabbard, author of “A Life Beyond Reason: A Father’s Memoir.” Chris is an associate professor at the University of Northern Florida. He published “A Life Beyond Reason” after his son August, who was born with significant disabilities, passed away in 2013. This week’s podcast delves into the beautiful life story of August and the real world consequences of a broken safety net.

49 MINJUL 9
Comments
Chris Gabbard: "A Life Beyond Reason"

Miggy's Guide to Navigating The Disability World

Awriter and artist, Amy Webb (aka Miggy) is a passionate advocate for disability rights and writes about the issues her family frequently faces. She interviewsother special needs' families and individuals with the hope of changing the perception of disability one story at a time. In today's podcast, we delved into Amy's journey and learned that Amy's life as an artist is what sustains her, what gets her out of bed in the morning and persists despite the challenges and joys of parenting in general. Amy shared the genesis of her children's book When Charley Met Emma, a creation that grew out of a blog post that she's written for years called Miggy's Guide to Navigating a Special Needs Encounter. When Charley Met Emma, illustrated by Merrilee Liddiard, is a children's book about a boy named Charlie who goes to a playground with his mother and has an encounter with a girl in a wheelchair -- a girl named Emma with limb differences. We hope you enjoy the show and we highly recommend you check out the book. Please subscribe to the show and give us a review on your favorite podcast provider: Apple Podcasts: bit.ly/ApplePodcastReview Google Play: bit.ly/GooglePodcastReview Spotify: bit.ly/SpotifyPodcastReview

47 MINJUN 25
Comments
Miggy's Guide to Navigating The Disability World

Welcome to Alaska - Elizabeth and Jason catch-up

We have been on a brief hiatus due to a couple of chaotic weeks for your favorite podcast hosts. In this episode Elizabeth and Jason check-in on each other, talk about an Alaskan adventure, children leaving the nest and much more. We also highlight our favorite episodes and insights from the last few months of shows. We hope you enjoy it! If you have a minute, please subscribe to the show and give us a review on your favorite podcast provider: Apple Podcasts: http://bit.ly/ApplePodcastReview Google Play: http://bit.ly/GooglePodcastReview Spotify: http://bit.ly/SpotifyPodcastReview

25 MINJUN 5
Comments
Welcome to Alaska - Elizabeth and Jason catch-up

"My Heart Can't Even Believe It" - Amy Silverman

Elizabeth met Amy Silverman in real life when she was asked to "engage in conversation" with her at my local independent bookstore. She knew of Amy at the time as a journalist who had recently published a memoir called My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome. We parents of children with disabilities and special needs know one another because of the communities we have created, and Elizabeth had seen Amy's work online, had friends who knew her and was otherwise familiar with her, but it was such a joy and honor to finally meet and then talk writing, books and -- well -- parenting a kid with special needs. In today's podcast, we got to pick Amy's brain on her new projects andwhat's been happening with her and her family since the book was published. Amy is funny -- so funny, in fact, that we laughed throughout the whole episode, and I think you'll very much enjoy joining us! Amyis a freelance writer/editor/teacher in her hometown of Phoenix, Arizona, a place she's still learning to love. She's married to Ray Stern, an editor at Phoenix New Times, the alternative newsweekly. They have two children, Annabelle and Sophie. When Sophie was born, the couple were surprised to learn that she had Down Syndrome. As Amy said, "Wait a second, I have never written about Down syndrome. I have never met a person with Down syndrome. I don't know anything about people with intellectual disabilities. [I] had to have a real come-to-Jesus with myself, which is not easy for a Jewish girl, and realize that I was the one who avoided people with Down syndrome in the checkout line at Safeway." In today's conversation, we spoke about the transitions our children face when their older siblings leave home for college, and that led to Amy telling us about her daughter Sophie's persistent questioning of her own place in the world.

52 MINMAY 14
Comments
"My Heart Can't Even Believe It" - Amy Silverman

Heather Barnes Jackson: "The Expression of Grief Being Praise"

In today's podcast, we had the great pleasure of talking with Heather Barnes Jackson, the co-founder and CEO of the Realm of Caring Foundation (RoC), an internationally acclaimed non-profit primarily serving families who are dealing with life-limiting and chronic health conditions and are using cannabinoid therapy.The foundationserves over 55,000 families and 1500 Health Care Professionals from all over the world through their care center that speaks 5 languages and fields over 7000 inquiries monthly. They reach over 1 million people a month through their efforts and awareness. RoC is doing innovative and first of its kind research with Johns Hopkins University, collaborating on the largest registry in the US. They use this research to deliver revolutionary education to the community. RoC has distributed over $350,000 in grants to families in need. They also have aided in over twenty states adding cannabis legislation since 2014. Heather talked a bit about how she started Realm of Caring and how it grew over 10,000% since 2013. She's also a published researcher, an author and a speaker who has presented in 7 countries. Today she shared with us her passion for community, social entrepreneurship and "disrupting the status quo." We got tips on how to turn off social media and take care of yourself, and she wowed us with an intense discussion of her most recent obsession -- suffering and grief and praise.

40 MINAPR 30
Comments
Heather Barnes Jackson: "The Expression of Grief Being Praise"