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Patients Have Power!

Clara Health

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Patients Have Power!

Patients Have Power!

Clara Health

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About Us

Lilly Stairs and Aaron Jun, Heads of Patient Advocacy and Marketing respectively at Clara Health, are joined by patient advocates, healthcare professionals, and more in wide-ranging discussions about healthcare health journeys in the 21st century.

Latest Episodes

Lucky Number 13: Peter Morley's Endless Advocacy

Peter lives with multiple chronic conditions but has spent the past two years tirelessly advocating for patients everywhere by taking the morning train from his home in New York City to Washington D.C. Aaron talks to Peter about what advocacy has accomplished, where advocacy will go next, and the things we can look forward to in 2019.

67 MIN2019 FEB 28
Comments
Lucky Number 13: Peter Morley's Endless Advocacy

Combatting Ultra-Rare Disease

Aaron interviews Dr. Alex Solyom, senior medical director at Enzyvant, about his team's work in developing a new therapy for an ultra-rare genetic condition known as Farber disease.

17 MIN2019 FEB 20
Comments
Combatting Ultra-Rare Disease

Advocating for Rare Disease in Mississippi

A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.

49 MIN2018 DEC 25
Comments
Advocating for Rare Disease in Mississippi

Representation Matters: Increasing Inclusivity in Research

Lilly chats with the ladies of the MS Minority Research Engagement Partnership Network (which is a bit of a mouthful!) Holly, Anita, and Shawn about their work in increasing inclusivity and access in scientific research.

31 MIN2018 DEC 5
Comments
Representation Matters: Increasing Inclusivity in Research

Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

Maria Thomas joins Lilly in honor of Hyperhidrosis Awareness Month to talk about her “life as a puddle” and inspiring advocacy work.

24 MIN2018 NOV 29
Comments
Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

Healthcare is on the ballot, with Matt Cortland

To discuss the healthcare issues that are at stake in the upcoming midterm elections, we speak to lawyer, healthcare advocate, and professional patient, Matt Cortland. As a person living with chronic illnesses, Matt knows all too well the necessity of equitable and robust access to care in everyone's lives; as a lawyer with a Master's in Public Health, he knows the issues and the policies inside and out. Here's our conversation about American healthcare and the things that are at stake in November.

56 MIN2018 OCT 31
Comments
Healthcare is on the ballot, with Matt Cortland

Christopher Snider from Tidepool.org

To kick off the new season, Lilly sits with Chris Snider, a diabetes advocate, blogger, podcaster, and the community manager at Tidepool.org, an open-source and not-for-profit company working to make diabetes data more accessible. Chris chats about his work, maturation as an advocate, and fighting for access to better and more inclusive care.

28 MIN2018 OCT 11
Comments
Christopher Snider from Tidepool.org

Twenty-two - "How can I make a difference today?"

Peter Morley (@morethanmySLE on Twitter) is using his story to help fight for healthcare. Although he was once a very private person who never even told his friends he had cancer, Peter found his voice after the 2016 Presidential election, when he felt called to fight to protect the gains of the Affordable Care Act. In this wide-ranging conversion, we discuss the power of a story, taking 3:25AM trains from NYC to DC, and how his first-ever trip to DC resulted in making a John McCain staffer cry.

74 MIN2018 AUG 1
Comments
Twenty-two - "How can I make a difference today?"

Twenty-one: "If you had three wishes, what would they be?"

Ashley Boynes-Shuck is a writer, patient advocate, and a powerhouse voice for those who live with chronic conditions. Among other things, she's a published author who just finished her fourth book, an animal lover and advocate, a lover of fashion who won a fashion award from the Pittsburgh Fashion Hall of Fame, an avid birdwatcher...and somehow she found time to chat with Lilly about her journey, her ongoing projects, and her life as one-half of a power couple.

25 MIN2018 JUL 26
Comments
Twenty-one: "If you had three wishes, what would they be?"

Twenty - "My heart is tipped over."

"My heart is in the wrong place in my chest." Molly Sarah chats with Lilly about her long road to diagnosis, her stint as a roller derby athlete, and why her rheumatologist shouted, "Oh my god, I got one!" when he first met her.

31 MIN2018 JUL 19
Comments
Twenty - "My heart is tipped over."

Latest Episodes

Lucky Number 13: Peter Morley's Endless Advocacy

Peter lives with multiple chronic conditions but has spent the past two years tirelessly advocating for patients everywhere by taking the morning train from his home in New York City to Washington D.C. Aaron talks to Peter about what advocacy has accomplished, where advocacy will go next, and the things we can look forward to in 2019.

67 MIN2019 FEB 28
Comments
Lucky Number 13: Peter Morley's Endless Advocacy

Combatting Ultra-Rare Disease

Aaron interviews Dr. Alex Solyom, senior medical director at Enzyvant, about his team's work in developing a new therapy for an ultra-rare genetic condition known as Farber disease.

17 MIN2019 FEB 20
Comments
Combatting Ultra-Rare Disease

Advocating for Rare Disease in Mississippi

A newborn screening is a routine procedure. Shannah didn't give it much thought as she brought her daughter, Emmalyn, home from the hospital. But a late-night call set her down a road towards advocacy that she couldn't have predicted.

49 MIN2018 DEC 25
Comments
Advocating for Rare Disease in Mississippi

Representation Matters: Increasing Inclusivity in Research

Lilly chats with the ladies of the MS Minority Research Engagement Partnership Network (which is a bit of a mouthful!) Holly, Anita, and Shawn about their work in increasing inclusivity and access in scientific research.

31 MIN2018 DEC 5
Comments
Representation Matters: Increasing Inclusivity in Research

Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

Maria Thomas joins Lilly in honor of Hyperhidrosis Awareness Month to talk about her “life as a puddle” and inspiring advocacy work.

24 MIN2018 NOV 29
Comments
Beyond Sweat: How Hyperhidrosis Shapes Everyday Life

Healthcare is on the ballot, with Matt Cortland

To discuss the healthcare issues that are at stake in the upcoming midterm elections, we speak to lawyer, healthcare advocate, and professional patient, Matt Cortland. As a person living with chronic illnesses, Matt knows all too well the necessity of equitable and robust access to care in everyone's lives; as a lawyer with a Master's in Public Health, he knows the issues and the policies inside and out. Here's our conversation about American healthcare and the things that are at stake in November.

56 MIN2018 OCT 31
Comments
Healthcare is on the ballot, with Matt Cortland

Christopher Snider from Tidepool.org

To kick off the new season, Lilly sits with Chris Snider, a diabetes advocate, blogger, podcaster, and the community manager at Tidepool.org, an open-source and not-for-profit company working to make diabetes data more accessible. Chris chats about his work, maturation as an advocate, and fighting for access to better and more inclusive care.

28 MIN2018 OCT 11
Comments
Christopher Snider from Tidepool.org

Twenty-two - "How can I make a difference today?"

Peter Morley (@morethanmySLE on Twitter) is using his story to help fight for healthcare. Although he was once a very private person who never even told his friends he had cancer, Peter found his voice after the 2016 Presidential election, when he felt called to fight to protect the gains of the Affordable Care Act. In this wide-ranging conversion, we discuss the power of a story, taking 3:25AM trains from NYC to DC, and how his first-ever trip to DC resulted in making a John McCain staffer cry.

74 MIN2018 AUG 1
Comments
Twenty-two - "How can I make a difference today?"

Twenty-one: "If you had three wishes, what would they be?"

Ashley Boynes-Shuck is a writer, patient advocate, and a powerhouse voice for those who live with chronic conditions. Among other things, she's a published author who just finished her fourth book, an animal lover and advocate, a lover of fashion who won a fashion award from the Pittsburgh Fashion Hall of Fame, an avid birdwatcher...and somehow she found time to chat with Lilly about her journey, her ongoing projects, and her life as one-half of a power couple.

25 MIN2018 JUL 26
Comments
Twenty-one: "If you had three wishes, what would they be?"

Twenty - "My heart is tipped over."

"My heart is in the wrong place in my chest." Molly Sarah chats with Lilly about her long road to diagnosis, her stint as a roller derby athlete, and why her rheumatologist shouted, "Oh my god, I got one!" when he first met her.

31 MIN2018 JUL 19
Comments
Twenty - "My heart is tipped over."
hmly
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