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The Ankylosing Spondylitis Podcast

jaysonsacco

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The Ankylosing Spondylitis Podcast
The Ankylosing Spondylitis Podcast

The Ankylosing Spondylitis Podcast

jaysonsacco

1
Followers
1
Plays
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About Us

A podcast for people with Ankylosing Spondylitis. I am Jayson Sacco, a 34 year plus Ankylosing Spondylitis survivor. With this show, I want to bring the AS community together and talk with doctors, organizations, and individuals all dealing with AS.

Latest Episodes

New Guidelines for Treating Ankylosing Spondylitis

I thought we would cover today some new best practices for rheumatologists in working with Ankylosing Spondylitis patients. Now these are updates that came about from the annual rheumatologist meeting that was held earlier this year. These are the guidelines from the American College of Rheumatology, the Spondylitis Association of America and the Spondyloarthritis Research and Treatment Network and they've updated their guidelines on the management of Ankylosing Spondylitis and Nonradiographic Axial Spondyloarthritis.

11 MIN3 d ago
Comments
New Guidelines for Treating Ankylosing Spondylitis

9 Complications of Ankylosing Spondylitis

Hello and welcome to this episode of The Ankylosing Spondylitis Podcast. I decided in this episode I was going to kind of revisit some of the areas that we had already touched upon and some issues I’ve been having with my right eye brought this upon. I started looking around I said, you know, I've kind of touched about all this, but I'm going to tie them into this package of nine possible complications that we can come into from having Ankylosing Spondylitis. The actual nine possible complications came from an article in Medical News Today that I'll have linked below. But a lot of these are all things that those of us that have Ankylosing Spondylitis need to be aware of, we need to watch out for this. If anybody's listening for the first time, Ankylosing Spondylitis is a chronic autoimmune disorder. Anyone that's diagnosed with AS needs to be aware of these complications, that it can present to our health, both physical health and mental health. There are a lot of things that we need to be aware of. So first, this week'sQuestion of the Week, saw a post yesterday that kind of touched me it was one where the person said that they were really kind of feeling ignored by everybody withdrawn. No real social life, at times, maybe despondent, maybe it's a little touch, but I'm going to use that word despondent, many people and what some fantastic to see jumped right on and told this person, hey, you're walking around here, and I understand how you're feeling. But you know, chin up, all of that is great to support the person. I love seeing it. But this person's emotions were not wrong. As I touched on in the last one, they have to own their whole scope of emotions, and then deal with it in the best way that they can. So I hope this person gets any type of therapeutic help that they need, build a support network, even if it's support that you don't physically see the people but you talk to them online. All of that is Good because we know that this disease can really affect you socially. And overall it can just be a real, a real isolating type of item and we'll talk a little bit more than nine items. So anyway, I saw that I was really happy to see everybody jump right in and discuss with this person. So kudos to everybody that is listening that takes place at the forums participates and offers a friendly shoulder to cry on so to speak when it's needed. I really enjoy that about this community. We're going to look at the complications as we've said, Ankylosing Spondylitis you know as a type of arthritis, and if based upon triggering painful inflammation in the body, whether it be in the hips, the knees, the feet, the elbows, the, you know, ribs, whatever. As the condition progresses, if the inflammation remains unchecked, other complications can arise in our life. It's very important to get the inflammation controlled that can be done by diet that can be done by medication. or some combination of all of the above. If you're having questions, not sure where to start, talk to your doctor. These items I'm going to go across just so I can get this out there. I am not a doctor. This is not specific medical advice related to you. It's for informational purposes only. If one of these sounds like it's something that you are having a struggle with dealing with, or concerned about, consult your doctor talk to him or her so that they can help you work through the stages of what needs to be done to alleviate this problem or head off this problem. Number one, eye problems we all know about uveitis. I write on the type of conjunctivitis that you might get through having Ankylosing Spondylitis. As I've said in previous episodes, you really want to have now this really applies more to the United States because I'm not sure how doctors work in other countries), but if you have Ankylosing Spondylitis in the United States, you really want to have an ophthalmologist at a minimum on call. The ophthalmologist can usually,...

16 MIN1 w ago
Comments
9 Complications of Ankylosing Spondylitis

Diagnosed with Ankylosing Spondylitis, Now What?

So you've been diagnosed with Ankylosing Spondylitis. Now what? You know, maybe you just received this diagnosis from your rheumatologist you've been seeing. This could be your first rheumatologist, could be second, third, or fourth one if you were having issues with any of them. They've given you, lots of information.

16 MIN2 w ago
Comments
Diagnosed with Ankylosing Spondylitis, Now What?

Grieving For My Old Life

Hello and welcome to this episode of the Ankylosing Spondylitis podcast. It's really great to have you all back for another episode. This is going to be an interesting one; it's going to get a little deep, maybe a little heavy. I came across an article that was pretty interesting, written in Healthline by Angie Ebba from June of 2019. The article and there will be a link in the show notes was titled “Stay Positive’ Isn't Good Advice for Chronically I’ll People. Here's Why.” Now, let me preface this with a few things. I tend to try and always say, if anybody asks me how I'm doing, “I'm doing fine, doing great.” You know, those are just the standard go-to responses. Everything's good. We all know that with a chronic illness, we all can suffer from depression. It's just normal because you're constantly in pain. And you look around co-workers, friends, spouses who aren't dealing with these items, and it can just really play with your psyche and put you in a depression. As we look at that, if we have a spouse say, “Just stay positive!” or a parent that says “Just stay positive”, You know, you get through this, we know that they don't understand the pain and the issues of what a person with chronic illnesses/ chronic pain deals with. I want to believe that they're not saying that to be mean, or know what to believe that they're saying that to really be helpful to you, really to try and bring your spirits up, but I don't know if that works for all of us.

15 MIN3 w ago
Comments
Grieving For My Old Life

But Women Don't Get AS

For the Question of the Week, can AS be inherited. Here is a link to the article (https://www.nhs.uk/conditions/ankylosing-spondylitis/causes/) that I took some of the items I discussed for the question. Everyone with Ankylosing Spondylitis has heard that “Women Don’t get AS” uttered by someone before. In this episode, I run down a list of 8 items from the article Ankylosing Spondylitis in Women: 8 Key Facts to Stop the Stigma (https://creakyjoints.org/education/ankylosing-spondylitis-in-women/) This article by Lauren Gelman from Creaky Joints is really an interesting bit of information with links to all sorts of studies discussing AS in women more in-depth.

16 MINNOV 4
Comments
But Women Don't Get AS

Having a service dog, an interview with Riley Cook

In this episode,​ I speak with Riley Cook about her Ankylosing Spondylitis and her service dog Gatsby and the various ways he helps her on a day to day basis.. Riley has been dealing with AS for about 10 years. A few years ago she decided she needed a service dog and took on the task of training Gatsby herself to perform the needed tasks. Gatsby can help Riley with a number of daily tasks like helping to steady Riley when walking, bracing for Riley when Riley needs to stand up, picking up items from the floor, pulling Riley’s wheelchair and so much more.

22 MINOCT 27
Comments
Having a service dog, an interview with Riley Cook

A Short History of Ankylosing Spondylitis

In this episode, I present a brief history of Ankylosing Spondylitis. But first, the Question of the Week; on one of the Facebook Forums, I saw a question related to leg neuropathy from hip surgery. Getting leg neuropathy from a hip replacement is a known issue that you can encounter. While both the Orthopedic Surgeon and the Anastesealogist are working on you during a surgery, your nerves can be damaged in a number of ways. Here is an article that discusses it https://online.boneandjoint.org.uk/doi/pdf/10.1302/0301-620x.99b1.bjj-2016-0430.r1 In the above article, it describes Nerve Palsy after total hip arthroplasty. This is the condition that I had and it ended up causing damage to the Sciatic and Femoral nerve resulting in drop foot and no feeling from the knee down in my left leg. It is a very good read and something you should discuss with your surgeon before a procedure. In dealing with the history of Ankylosing Spondylitis, it’s probably easiest to lay out the past as follow...

9 MINOCT 20
Comments
A Short History of Ankylosing Spondylitis

10 Natural Treatments to try for Ankylosing Spondylitis

In this episode,​ I look at 10 natural ways to help cope with Ankylosing Spondylitis. As with anything related to the treatment of your medical condition, please consult with your doctors about any exercise or procedures you want to try.

20 MINOCT 13
Comments
10 Natural Treatments to try for Ankylosing Spondylitis

6 Ways I Try to Cope With Depression

In this episode, I cover six things that I do or have done to help combat depression partially related to Ankylosing Spondylitis. First I do a Question of the Week. A question listed online asked if stress could trigger a flair. I came across this article that discusses this very item. I also include some personal insight into​ this topic. I also discuss ways that I have tried to cope with depression. It never fails for me, that as the weather transitions from summer to fall here in Michigan, I get depression setting in. I HATE winter and with AS find everything I need to get done takes much longer. I found this article that outlined some things I do to help combat depression. They are: Exercise - My exercise is limited, but I know that when I do my stretches and pushups I feels better. Sleep Well – I have sleep apnea and have started using my CPAP more to help correct this. Get Educated – I started getting more information on depression, AS, and other topics that I knew would he...

12 MINOCT 6
Comments
6 Ways I Try to Cope With Depression

16 Myths About Ankylosing Spondylitis Treatment

In this episode I review and article from drugs.com that discusses The Top 16 Myths About Ankylosing Spondylitis Treatment. I tackle each myth and apply how I am affected or if I think it is Fact or Myth. I apologize for sound, I forgot to set the microphone for recording and episode was recorded from computer microphone. Also, in mentioning food, I meant to say that the types of foods you don't eat can help to reduce inflammation.

24 MINSEP 24
Comments
16 Myths About Ankylosing Spondylitis Treatment

Latest Episodes

New Guidelines for Treating Ankylosing Spondylitis

I thought we would cover today some new best practices for rheumatologists in working with Ankylosing Spondylitis patients. Now these are updates that came about from the annual rheumatologist meeting that was held earlier this year. These are the guidelines from the American College of Rheumatology, the Spondylitis Association of America and the Spondyloarthritis Research and Treatment Network and they've updated their guidelines on the management of Ankylosing Spondylitis and Nonradiographic Axial Spondyloarthritis.

11 MIN3 d ago
Comments
New Guidelines for Treating Ankylosing Spondylitis

9 Complications of Ankylosing Spondylitis

Hello and welcome to this episode of The Ankylosing Spondylitis Podcast. I decided in this episode I was going to kind of revisit some of the areas that we had already touched upon and some issues I’ve been having with my right eye brought this upon. I started looking around I said, you know, I've kind of touched about all this, but I'm going to tie them into this package of nine possible complications that we can come into from having Ankylosing Spondylitis. The actual nine possible complications came from an article in Medical News Today that I'll have linked below. But a lot of these are all things that those of us that have Ankylosing Spondylitis need to be aware of, we need to watch out for this. If anybody's listening for the first time, Ankylosing Spondylitis is a chronic autoimmune disorder. Anyone that's diagnosed with AS needs to be aware of these complications, that it can present to our health, both physical health and mental health. There are a lot of things that we need to be aware of. So first, this week'sQuestion of the Week, saw a post yesterday that kind of touched me it was one where the person said that they were really kind of feeling ignored by everybody withdrawn. No real social life, at times, maybe despondent, maybe it's a little touch, but I'm going to use that word despondent, many people and what some fantastic to see jumped right on and told this person, hey, you're walking around here, and I understand how you're feeling. But you know, chin up, all of that is great to support the person. I love seeing it. But this person's emotions were not wrong. As I touched on in the last one, they have to own their whole scope of emotions, and then deal with it in the best way that they can. So I hope this person gets any type of therapeutic help that they need, build a support network, even if it's support that you don't physically see the people but you talk to them online. All of that is Good because we know that this disease can really affect you socially. And overall it can just be a real, a real isolating type of item and we'll talk a little bit more than nine items. So anyway, I saw that I was really happy to see everybody jump right in and discuss with this person. So kudos to everybody that is listening that takes place at the forums participates and offers a friendly shoulder to cry on so to speak when it's needed. I really enjoy that about this community. We're going to look at the complications as we've said, Ankylosing Spondylitis you know as a type of arthritis, and if based upon triggering painful inflammation in the body, whether it be in the hips, the knees, the feet, the elbows, the, you know, ribs, whatever. As the condition progresses, if the inflammation remains unchecked, other complications can arise in our life. It's very important to get the inflammation controlled that can be done by diet that can be done by medication. or some combination of all of the above. If you're having questions, not sure where to start, talk to your doctor. These items I'm going to go across just so I can get this out there. I am not a doctor. This is not specific medical advice related to you. It's for informational purposes only. If one of these sounds like it's something that you are having a struggle with dealing with, or concerned about, consult your doctor talk to him or her so that they can help you work through the stages of what needs to be done to alleviate this problem or head off this problem. Number one, eye problems we all know about uveitis. I write on the type of conjunctivitis that you might get through having Ankylosing Spondylitis. As I've said in previous episodes, you really want to have now this really applies more to the United States because I'm not sure how doctors work in other countries), but if you have Ankylosing Spondylitis in the United States, you really want to have an ophthalmologist at a minimum on call. The ophthalmologist can usually,...

16 MIN1 w ago
Comments
9 Complications of Ankylosing Spondylitis

Diagnosed with Ankylosing Spondylitis, Now What?

So you've been diagnosed with Ankylosing Spondylitis. Now what? You know, maybe you just received this diagnosis from your rheumatologist you've been seeing. This could be your first rheumatologist, could be second, third, or fourth one if you were having issues with any of them. They've given you, lots of information.

16 MIN2 w ago
Comments
Diagnosed with Ankylosing Spondylitis, Now What?

Grieving For My Old Life

Hello and welcome to this episode of the Ankylosing Spondylitis podcast. It's really great to have you all back for another episode. This is going to be an interesting one; it's going to get a little deep, maybe a little heavy. I came across an article that was pretty interesting, written in Healthline by Angie Ebba from June of 2019. The article and there will be a link in the show notes was titled “Stay Positive’ Isn't Good Advice for Chronically I’ll People. Here's Why.” Now, let me preface this with a few things. I tend to try and always say, if anybody asks me how I'm doing, “I'm doing fine, doing great.” You know, those are just the standard go-to responses. Everything's good. We all know that with a chronic illness, we all can suffer from depression. It's just normal because you're constantly in pain. And you look around co-workers, friends, spouses who aren't dealing with these items, and it can just really play with your psyche and put you in a depression. As we look at that, if we have a spouse say, “Just stay positive!” or a parent that says “Just stay positive”, You know, you get through this, we know that they don't understand the pain and the issues of what a person with chronic illnesses/ chronic pain deals with. I want to believe that they're not saying that to be mean, or know what to believe that they're saying that to really be helpful to you, really to try and bring your spirits up, but I don't know if that works for all of us.

15 MIN3 w ago
Comments
Grieving For My Old Life

But Women Don't Get AS

For the Question of the Week, can AS be inherited. Here is a link to the article (https://www.nhs.uk/conditions/ankylosing-spondylitis/causes/) that I took some of the items I discussed for the question. Everyone with Ankylosing Spondylitis has heard that “Women Don’t get AS” uttered by someone before. In this episode, I run down a list of 8 items from the article Ankylosing Spondylitis in Women: 8 Key Facts to Stop the Stigma (https://creakyjoints.org/education/ankylosing-spondylitis-in-women/) This article by Lauren Gelman from Creaky Joints is really an interesting bit of information with links to all sorts of studies discussing AS in women more in-depth.

16 MINNOV 4
Comments
But Women Don't Get AS

Having a service dog, an interview with Riley Cook

In this episode,​ I speak with Riley Cook about her Ankylosing Spondylitis and her service dog Gatsby and the various ways he helps her on a day to day basis.. Riley has been dealing with AS for about 10 years. A few years ago she decided she needed a service dog and took on the task of training Gatsby herself to perform the needed tasks. Gatsby can help Riley with a number of daily tasks like helping to steady Riley when walking, bracing for Riley when Riley needs to stand up, picking up items from the floor, pulling Riley’s wheelchair and so much more.

22 MINOCT 27
Comments
Having a service dog, an interview with Riley Cook

A Short History of Ankylosing Spondylitis

In this episode, I present a brief history of Ankylosing Spondylitis. But first, the Question of the Week; on one of the Facebook Forums, I saw a question related to leg neuropathy from hip surgery. Getting leg neuropathy from a hip replacement is a known issue that you can encounter. While both the Orthopedic Surgeon and the Anastesealogist are working on you during a surgery, your nerves can be damaged in a number of ways. Here is an article that discusses it https://online.boneandjoint.org.uk/doi/pdf/10.1302/0301-620x.99b1.bjj-2016-0430.r1 In the above article, it describes Nerve Palsy after total hip arthroplasty. This is the condition that I had and it ended up causing damage to the Sciatic and Femoral nerve resulting in drop foot and no feeling from the knee down in my left leg. It is a very good read and something you should discuss with your surgeon before a procedure. In dealing with the history of Ankylosing Spondylitis, it’s probably easiest to lay out the past as follow...

9 MINOCT 20
Comments
A Short History of Ankylosing Spondylitis

10 Natural Treatments to try for Ankylosing Spondylitis

In this episode,​ I look at 10 natural ways to help cope with Ankylosing Spondylitis. As with anything related to the treatment of your medical condition, please consult with your doctors about any exercise or procedures you want to try.

20 MINOCT 13
Comments
10 Natural Treatments to try for Ankylosing Spondylitis

6 Ways I Try to Cope With Depression

In this episode, I cover six things that I do or have done to help combat depression partially related to Ankylosing Spondylitis. First I do a Question of the Week. A question listed online asked if stress could trigger a flair. I came across this article that discusses this very item. I also include some personal insight into​ this topic. I also discuss ways that I have tried to cope with depression. It never fails for me, that as the weather transitions from summer to fall here in Michigan, I get depression setting in. I HATE winter and with AS find everything I need to get done takes much longer. I found this article that outlined some things I do to help combat depression. They are: Exercise - My exercise is limited, but I know that when I do my stretches and pushups I feels better. Sleep Well – I have sleep apnea and have started using my CPAP more to help correct this. Get Educated – I started getting more information on depression, AS, and other topics that I knew would he...

12 MINOCT 6
Comments
6 Ways I Try to Cope With Depression

16 Myths About Ankylosing Spondylitis Treatment

In this episode I review and article from drugs.com that discusses The Top 16 Myths About Ankylosing Spondylitis Treatment. I tackle each myth and apply how I am affected or if I think it is Fact or Myth. I apologize for sound, I forgot to set the microphone for recording and episode was recorded from computer microphone. Also, in mentioning food, I meant to say that the types of foods you don't eat can help to reduce inflammation.

24 MINSEP 24
Comments
16 Myths About Ankylosing Spondylitis Treatment
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