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Primary Immunodeficiency Q & A: an IDF Podcast

Immune Deficiency Foundation

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Primary Immunodeficiency Q & A: an IDF Podcast

Primary Immunodeficiency Q & A: an IDF Podcast

Immune Deficiency Foundation

1
Followers
0
Plays
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About Us

This podcast is a service of the Immune Deficiency Foundation, or IDF, a nonprofit organization dedicated to improving the diagnosis, treatment and quality of life of people diagnosed with primary immunodeficiency diseases, or PI. To learn more about primary immunodeficiency diseases and the PI community, please visit the IDF website at www.primaryimmune.org. If you have any questions you would like to be answered, email us at info@primaryimmune.org.Special thanks to Bryson Kemp for scoring this podcast! www.brysonkempmusic.com

Latest Episodes

All About Plasma

People living with a primary immunodeficiency, or PI are missing key parts of their immune system that help fight infections. Some types of PI leave people unable to make antibodies of their own. Many individuals living with PI rely on immunoglobulin replacement therapy (or Ig) to provide the antibodies that we don’t make on our own. Those antibodies are necessary to fight off bacteria and viruses. These replacement antibodies come from human plasma. This plasma is collected from volunteers and is used to make Ig and other plasma-derived therapies that are necessary to the survival of many living with PI as well as other rare diseases. We will be discussing the importance of plasma with Amy Efantis, the President & CEO of the Plasma Protein Therapeutics Association or PPTA, an organization representing more than 850 human plasma collection centers in North America and Europe.

41 minSEP 25
Comments
All About Plasma

Being Independent - Part of the Teen Series

Figuring out your journey through life can be tough, especially as you grow older and more independent. One of the best parts of being a teenager is having a little freedom and making your own decisions. In this episode, Keegan Hartman is with us to discuss how to manage our health while learning how to be more responsible for our own life choices.

38 minAUG 11
Comments
Being Independent - Part of the Teen Series

Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode

Common Variable Immune Deficiency, or CVID, is just one of the more than 400 primary immunodeficiencies, characterized by low levels of serum immunoglobulins and loss of antibodies, which causes an increased susceptibility to infection. While it is considered “common” compared to other immune deficiencies, questions still remain about the diagnosis, treatment, and well-being for people living with CVID. In this podcast episode, we will be discussing the symptoms, treatments, and health management associated with CVID with our guest, Dr. Charlotte Cunningham-Rundles.

41 minMAR 17
Comments
Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode

Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

Hemophagocytic lymphohistiocytosis (HLH) is a severe systemic inflammatory syndrome that can be fatal. HLH occurs when histiocytes and lymphocytes become overactive and attack the body rather than just bacteria and viruses. Join the Immune Deficiency Foundation as we sit down with Dr. Michael B. Jordon, from Cincinnati Children’s HLH Center of Excellence, to discuss the identification and management of HLH. To learn more about inheritance and PI, visit the IDF website: https://primaryimmune.org/about-primary-immunodeficiencies-diagnosis-information/inheritance. To learn more about HLH, how to diagnosis HLH, research and more, please visit: https://www.cincinnatichildrens.org/service/h/hlh.

35 min2019 MAR 21
Comments
Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

College Concerns - Part of the Young Adult Series

The transition to college is both stressful and exciting. For those living with a chronic disease like a primary immunodeficiency (PI), adjusting to campus life can be even more challenging. College students with a chronic condition generally require strategies to balance academics, socializing, and managing their disease. In this episode, the Immune Deficiency Foundation explores resources for college students with PI and offers tips for making the most of your college years.

29 min2018 NOV 29
Comments
College Concerns - Part of the Young Adult Series

Employment and PI - Part of the Young Adult Series

For people with primary immunodeficiency diseases (PI), employment is about more than just making money and job satisfaction. You need a job that will allow you to perform at a high standard with your diagnosis and will offer good health insurance benefits. There are many young people with PI who have amazing jobs. Join this Immune Deficiency Foundation (IDF) podcast and learn how you can be one of them.

37 min2018 NOV 8
Comments
Employment and PI - Part of the Young Adult Series

Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

People living with chronic illnesses know the physical toll it takes on the body. But it also takes an emotional toll and understanding how you are feeling mentally is as important as understanding how you are feeling physically. This podcast episode explores the emotional and psychological impact of a primary immunodeficiency disease (PI) in young adulthood, the connection between our minds and bodies, and how we can manage this relationship to positively affect our overall health.

35 min2018 OCT 18
Comments
Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

Taking Control of Your Healthcare Management - Part of the Young Adult Series

Young adults with primary immunodeficiency diseases (PI) must develop independent disease self-management skills as they transition from pediatric to adult-oriented healthcare systems. Join this podcast episode from the Immune Deficiency Foundation (IDF), learn about how young adults can best manage their PI and find a balanced approach to healthcare and life.

37 min2018 SEP 24
Comments
Taking Control of Your Healthcare Management - Part of the Young Adult Series
the END

Latest Episodes

All About Plasma

People living with a primary immunodeficiency, or PI are missing key parts of their immune system that help fight infections. Some types of PI leave people unable to make antibodies of their own. Many individuals living with PI rely on immunoglobulin replacement therapy (or Ig) to provide the antibodies that we don’t make on our own. Those antibodies are necessary to fight off bacteria and viruses. These replacement antibodies come from human plasma. This plasma is collected from volunteers and is used to make Ig and other plasma-derived therapies that are necessary to the survival of many living with PI as well as other rare diseases. We will be discussing the importance of plasma with Amy Efantis, the President & CEO of the Plasma Protein Therapeutics Association or PPTA, an organization representing more than 850 human plasma collection centers in North America and Europe.

41 minSEP 25
Comments
All About Plasma

Being Independent - Part of the Teen Series

Figuring out your journey through life can be tough, especially as you grow older and more independent. One of the best parts of being a teenager is having a little freedom and making your own decisions. In this episode, Keegan Hartman is with us to discuss how to manage our health while learning how to be more responsible for our own life choices.

38 minAUG 11
Comments
Being Independent - Part of the Teen Series

Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode

Common Variable Immune Deficiency, or CVID, is just one of the more than 400 primary immunodeficiencies, characterized by low levels of serum immunoglobulins and loss of antibodies, which causes an increased susceptibility to infection. While it is considered “common” compared to other immune deficiencies, questions still remain about the diagnosis, treatment, and well-being for people living with CVID. In this podcast episode, we will be discussing the symptoms, treatments, and health management associated with CVID with our guest, Dr. Charlotte Cunningham-Rundles.

41 minMAR 17
Comments
Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode

Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

Hemophagocytic lymphohistiocytosis (HLH) is a severe systemic inflammatory syndrome that can be fatal. HLH occurs when histiocytes and lymphocytes become overactive and attack the body rather than just bacteria and viruses. Join the Immune Deficiency Foundation as we sit down with Dr. Michael B. Jordon, from Cincinnati Children’s HLH Center of Excellence, to discuss the identification and management of HLH. To learn more about inheritance and PI, visit the IDF website: https://primaryimmune.org/about-primary-immunodeficiencies-diagnosis-information/inheritance. To learn more about HLH, how to diagnosis HLH, research and more, please visit: https://www.cincinnatichildrens.org/service/h/hlh.

35 min2019 MAR 21
Comments
Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode

College Concerns - Part of the Young Adult Series

The transition to college is both stressful and exciting. For those living with a chronic disease like a primary immunodeficiency (PI), adjusting to campus life can be even more challenging. College students with a chronic condition generally require strategies to balance academics, socializing, and managing their disease. In this episode, the Immune Deficiency Foundation explores resources for college students with PI and offers tips for making the most of your college years.

29 min2018 NOV 29
Comments
College Concerns - Part of the Young Adult Series

Employment and PI - Part of the Young Adult Series

For people with primary immunodeficiency diseases (PI), employment is about more than just making money and job satisfaction. You need a job that will allow you to perform at a high standard with your diagnosis and will offer good health insurance benefits. There are many young people with PI who have amazing jobs. Join this Immune Deficiency Foundation (IDF) podcast and learn how you can be one of them.

37 min2018 NOV 8
Comments
Employment and PI - Part of the Young Adult Series

Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

People living with chronic illnesses know the physical toll it takes on the body. But it also takes an emotional toll and understanding how you are feeling mentally is as important as understanding how you are feeling physically. This podcast episode explores the emotional and psychological impact of a primary immunodeficiency disease (PI) in young adulthood, the connection between our minds and bodies, and how we can manage this relationship to positively affect our overall health.

35 min2018 OCT 18
Comments
Coping with the Emotional Dimensions of PI - Part of the Young Adult Series

Taking Control of Your Healthcare Management - Part of the Young Adult Series

Young adults with primary immunodeficiency diseases (PI) must develop independent disease self-management skills as they transition from pediatric to adult-oriented healthcare systems. Join this podcast episode from the Immune Deficiency Foundation (IDF), learn about how young adults can best manage their PI and find a balanced approach to healthcare and life.

37 min2018 SEP 24
Comments
Taking Control of Your Healthcare Management - Part of the Young Adult Series
the END
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